Monday, October 5, 2009

ACT: Where is the agency to study my disease?

I have written a new essay for my ME/CFS Knowledge Center blog called
"Where is the agency to study my disease?"

What do I have?

By the CDC's new criteria, I don't have what they call "chronic fatigue syndrome." So what do I have?

Where is the CDC special office for my disease? Where is the NIH study group for my disease? And where is the advisory committee for my disease?

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It may be the testimony I present to the next meeting; it may not. But you can read the rest here:

<a href="http://cfsknowledgecenter.ning.com/profiles/blogs/where-is-the-agency-to-study">
http://cfsknowledgecenter.ning.com/profiles/blogs/where-is-the-agency-to-study</a>

Mary Schweitzer

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