improper treatment and care they have received, I thought it was high time=
U.S. =A0Secretary of Health and Human Services, Kathleen Sebelius, Assista=
nt Secretary for Health, Howard Koh, and other government officials follow =
with their own apologies. =A0So I created the following petition. =A0Please=
sign it, no matter where you live. =A0An email is sent to each of the gove=
rnment officials every time someone signs!=0A=0A=0Ahttps://www.change.org/p=
etitions/apologize-for-not-responding-appropriately-to-the-mecfs-epidemic=
=0A=0AThis is the text of the email that will be sent when you sign:=0A=0AA=
pologize for not responding appropriately to the ME/CFS epidemic.=0A=0ABj=
=F8rn Guldvog, Deputy Director General of the Norwegian Directorate of Heal=
th recently made the following statement: "I think that we have not cared f=
or people with ME to a great enough extent. I think it is correct to say th=
at we have not established proper health care services for these people, an=
d I regret that." =A0=0A=0AFollow the Norwegian Health Minister's example.=
=0A=0AIn addition, we ask that you:=0A=0A1. =A0Double the current NIH fundi=
ng for extramural research. =A0Priority should be given to research on biom=
arkers and potential pathogens as well as clinical trials.=A0=0A=0A2. =A0Ta=
ke down information on the CDC's CFS website stating testing for pathogens =
and biomarkers is "experimental and theoretical" and that GET and CBT are a=
ppropriate treatments.=0A=0A----------------=0A=0ASincerely,=0A=0A=0A=0AHer=
e's the link to the petition again:=0Ahttps://www.change.org/petitions/apol=
ogize-for-not-responding-appropriately-to-the-mecfs-epidemic=0A=0A=0APlease=
share with your email lists, put on your blogs, and spread the word any wa=
y you can think of! =A0The Chronic Fatigue Syndrome Advisory Committee meet=
s soon, so this is particularly timely.=0A=0AThank you!=0ALiz Willow
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