Importance: High
Sensitivity: Confidential
WPI sent Phlebolotmy International to our home; collected blood from us both
and the results were positive in both of us for the Retro Virus that Dr.
Judy Mikovitz has been researching. This was a 'Familial Research' study.
In '82 I got acute flu that never went away and progressed causing my immune
and body to go haywire with various infections and symptoms: fevers every
day usually 100 but sometimes over 105, huge swollen painful glands, painful
cysts that plugged my salivary gland and had to be surgically removed.
'swollen brain' causes pressure on my skull/head; loss of vision and
cognitive function. 'Polaroid Vison' if you know what that means.everything
looked like a photogragh(unreal). Fainting, falling down, shakes, rashes ,
not being able to sign my name, staph, pseudomonas, and fungal infections
moving around in my body. Sleeping 14 hour and still not waking. Relapses
after any physical excertion.
I conceived my son during this time. The wackyJ Dr I saw got nervous,
wanted me to have an because he was injecting me with 'high frequency sound
waves in water' using a little black machine to set the high frequencies.
His theory was that it would HEAT up all my cells causing them to JUMP and
shake and 'wake up'.well they caused my fetus' developing cells to also
then. I had three of these treatments before I knew I was pregnant.
Four months after he was born I relapsed badly, and received my first dx of
CEBV in 88.Ten years later a CA laboratory DX'd 'Chronic Mononuecliosis' in
98. I had 12 years of chronic bhronchitis and pseudomonas ear infections.
Then got an FMS dx and IBS and Osteo Dx. It' s been 30 years and I raised
three children alone for 18 of those.
My son had a dangerously low O2 SAT rate a 1 month of age and growing up
similar symptoms after any exertion. He had a positive HHV6A abd 7 dx at 17.
Then at 19-20 the new acute cutting type head pain started. I forced them to
give him anMRI which showed a grey matter lesion in the white inferior
cerebellar matter..they thought it was next to a nerve.
The 'headache Dr' tried Propanolol which did nothing for the pain.
The Neurologist he saw told his to take Excedrine- this was one week before
he suffered the Stroke-very rare form. (and 2 weeks after his 21st Bday)
Acut and massive Brain clots closed off a major vein so no oxygen or blood
flow at all. L jug bulb and behind both eyes. They are still there, the
blood has to go somewhere so there is collateral drainage. He lives with
8-10 head pain and also has FMS. He has several Endocrine lab test
discorders and Dx's. The Endo wants to try low dose Hydrocortisone for the
Adrenal failure. Low to no cortisol. He is hoping this will help the glands
start producing and also help his thyroid and hormone imbalance. Because of
Hypertension he doesn't want to do any hormone therapy.
We NEED treatment for the VIRUS' and then maybe we all can have a better
quality of life. Aids patients get treated, so should we.
Please do not share or forward w/o asking me please. Thankyou.
I was just moved by the MANS story as I thought it would help may son, being
a man.
<http://groups.yahoo.com/group/CFAlliance/message/38462;_ylc=X3oDMTJyOWppZGE
yBF9TAzk3MzU5NzE1BGdycElkAzc0NjQ0MDkEZ3Jwc3BJZAMxNzA1MDYxNjgyBG1zZ0lkAzM4NDY
yBHNlYwNkbXNnBHNsawN2bXNnBHN0aW1lAzEyOTkzMzA0MTA-> Re: Book: A Man's
Personal Journey with CFS
Posted by: "rrahman82"
<mailto:octobersky2020@gmail.com?Subject=%20Re%3A%20Book%3A%20A%20Man%27s%20
Personal%20Journey%20with%20CFS> octobersky2020@gmail.com
<http://profiles.yahoo.com/rrahman82> rrahman82
Fri Mar 4, 2011 10:08 am (PST)
Interesting...sounds depressing but that's how it is/can be for people
living with such devastating and debilitating conditions.
C, are you referring to any specific viruses? How is your son doing now?
RJ
--- In <mailto:CFAlliance%40yahoogroups.com> CFAlliance@yahoogroups.com, <
<mailto:cmarie3@...> cmarie3@...> wrote:
>
> My son inherited the virus' in utero- showed symtoms growing up and
suffered
> a rare stroke with massive brain clotting, just 2 weeks after his 21st
> birthday. He has every body system affected.
>
>
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