Wednesday, January 25, 2012

ACT: Letter, Re: ME survivor to talk on BBC (The Scotsman, 21 January 2012)

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The Scotsman Letters.

In the documentary, ME: An Sg=ECths Nimheil/The Toxic Tiredness, Part 1
(BBC Alba TV, 23 January 2012 --
http://www.bbc.co.uk/programmes/b019p6gp), after listing symptoms,
"which lead to a lifestyle that is awful," Dr Sarah Marr says that,
although for a few patients it may run its natural course, M.E. (Myalgic
Encephalomyelitis) is, for the majority, a lifetime illness, "though,"
she concludes, "it is not fatal." Tell that to the surviving families
and loved ones of Lynn Gilderdale, Sophia Mirza, amongst others around
the world and then wonder how many more have never been tested in life
or post mortem.

It would seem most intelligent to follow up what they had in common
after death - basal ganglionitis - for frequency, cause and any
inflammatory similarities of sufferers still living with M.E. Yet we
continue to squander precious funding on management techniques which
have so clearly failed for at least 25 years, or why do so many people
remain ill for decades.

Yours sincerely
drjohngreensmith@mecommunitytrust.org
Dr John H Greensmith
ME Community Trust.org

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