Apologies, I think I might have gotten the details in my initial post
wrong. Apparently there are two different studies taking place, one
with ME/CFS and Sjogren's syndrome patients which will be using the
MRC ring-fenced ME/CFS monies and another different study on Sjogren's
syndrome and Rituximab. Apparently some of the patients in the
Sjogren's/Rituximab study are also being included in the
Sjogren's/ME-CFS study to see what might change in response to
Rituximab. Apologies for any confusion this might have created.
Tate
On Mon, Mar 5, 2012 at 1:17 PM, Tate Mitchell <tatemitchell@gmail.com> wrot=
e:
> In the most recent APPG minutes Prof. Sir John Savill, CEO of the
> Medical Research Council, stated that in regards to the MRC=92s recent
> =A31.6m funding initiative for biomedical research into M.E., "One of
> the studies plans to use an existing cohort of patients to get a
> molecular handle on a finger print of fatigue. Within that study is a
> small group of patients who are being trialled with Rituximab, so this
> study seeks to compare and contrast symptoms with a known study."*
>
> According to the recent study announcements, the 'molecular
> fingerprint of fatigue' study is the one that is set to include
> patients with Sjogren's syndrome. I have made further inquiries as to
> whether the small trial of Rituximab was to include ME/CFS patients
> and was told it would not, despite ME/CFS patients taking part in the
> larger study. So apparently the MRC is planning on using ring-fenced
> monies specifically earmarked for research into ME/CFS and spending it
> on a trial on Rituximab in Sjogren's syndrome patients. Seeing as how
> the recent Rituximab findings have the potential to be one of the
> biggest breakthroughs in the history of ME/CFS research, would it not
> be appropriate to include ME/CFS patients in this trial as well?
>
> *http://www.actionforme.org.uk/Resources/Action%20for%20ME/Documents/get-=
involved/appg/CHAIR%20APPROVED%20APPG%20ME%20Minutes%2024%2001%2012%20.pdf
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