--------
For the Fukuda definition (1994), a group leader from Australia pointed out:
"The following are the other members of the International Chronic Fatigue
Syndrome Study Group: National Institutes of Health, Bethesda, Maryland: Ann
Schluederberg, ScD; University of Colorado, Denver, Colorado: James F.
Jones, MD; Prince Henry Hospital and University of New South Wales, Sydney,
Australia: Andrew R. Lloyd, MD, FRACP; King's College School of Medicine and
Dentistry, London, United Kingdom: Simon Wessely, MRCP, MRC Psych;
Polyclinic Medical Center and Pennsylvania State College of Medicine,
Harrisburg, Pennsylvania: Nelson M. Gantz, MD; Texas A & M University Health
Science Center and Scott & White Memorial Hospital, Temple, Texas: Gary P.
Holmes, MD; University of Washington Medical Center, Seattle, Washington:
Dedra Buchwald, MD; University of Toronto, Toronto, Canada: Susan Abbey, MD,
FRCP(C); University of California, San Francisco, San Francisco, California,
and Alta Bates Hospital, Berkeley, California: Jonathan Rest, MD; University
of California, San Francisco, San Francisco, California: Jay A. Levy, MD;
Food and Drug Administration, Rockville, Maryland: Heidi Jolson, MD, MPH;
Lake Tahoe Medical Center, Incline Village, Nevada: Daniel L. Peterson, MD;
University Hospital Nijmegen, Nijmegen, the Netherlands: Jan H.M.M.
Vercoulen, PhD; Centro Regionale di Riferminento Oncologico, Aviano, Italy:
Umberto Tirelli, MD; Karolinska Institute at Huddinge University Hospital,
Stockholm, Sweden: Birgitta Evengard, MD; New Jersey Medical School, Newark,
New Jersey: Benjamin H. Natelson, MD; Centers for Disease Control and
Prevention, Atlanta, Georgia: Lea Steele, Michele Reyes, and William C.
Reeves, MD."
He says he thinks the big question is, "Does the CDC have the
authority to appoint such a group", and "Why do they have more authority
than any other collaborative group?"
---
Another activist pointed out that in the paper, "Identification of
ambiguities in the 1994 chronic fatigue syndrome research case
definition and recommendations for resolution",
http://www.biomedcentral.com/1472-6963/3/25 the E-mail address for the
International Chronic Fatigue Syndrome Study Group is given as William
(Bill) Reeves' E-mail address: wcr1@cdc.gov
He also found another reference to the group for the Fukuda (1994) definition:
"In response to criticisms of the original CDC definition of CFS as
too ambiguous and over-exclusive, and to facilitate a more systematic
collection of data internationally, the International Chronic Fatigue
Syndrome Study Group, headed by CDC and including representatives from
Australia and Great Britain, proposed a revised CFS case definition in
1994."[1]
---
In case people missed it, I listed the members of the International
Chronic Fatigue Syndrome Study Group for the Hickie (2009) paper.
I'm afraid I don't see myself having time for investigating this much
further - I have fallen behind with some work as I spent quite a bit
of time over the summer on writing letters to medical journals (I've
heard that I've had three more accepted which would be five in the
last year). Most other activists and indeed researchers are not
writing letters to the editor so there is a huge gap in this area so I
think going forward I'm probably going to use a lot of my energy for
international activism (i.e. apart from what I have to do in Ireland)
on writing letters to the editor.
Regards,
Tom
=============================================
Don't support the Reeves/empirical definition/criteria for CFS?
Sign the petition at: http://CFSdefinitionpetition.notlong.com
=============================================
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