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>>>>> Help ME Circle <<<<
>>>> 20 August 2009 <<<<
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http://www.hhs.gov/advcomcfs/recommendations/05272009.html
Committee Recommendations
May 27-28, 2009
CFSAC voted upon and agreed for
the following recommendations to be
forwarded to the Assistant Secretary
for Health and the Secretary:
Recommendation # 1
Establish progressive leadership at the CDC that can
achieve efficient meaningful progress in CFS
research, clinical care and education.
Recommendation # 2
Provide adequate funding to CDC to effectively
carry out a detailed 5-year plan. This should
include, but not be limited to, immediate progress
in these priority areas:
Identification of biomarkers and etiology of CFS;
Creation of guidelines for adult and pediatric CFS
management in full partnership with organizations
representing CFS scientific and clinical expertise;
Provision of web-based guidelines for CFS
management given our current state of knowledge
and expert opinion, again in full partnership with
organizations representing CFS clinical and scientific
expertise;
and Provision of comprehensive information about
CFS in partnership with CFS experts to the scientific
community, medical and mental health providers,
educational institutions and the public for both adult
and pediatric CFS through DHHS resources.
Recommendation # 3
Establish Regional Centers funded by DHHS for
clinical care, research, and education on CFS. These
centers will provide care to this critically
underserved population, educate providers, outreach
to the community, and provide effective basic
science, translational, and clinical research on CFS.
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