Tuesday, October 13, 2009

NOT, MED, RES: XMRV/XAND Info Center Now Up on Phoenix Rising

The discovery of the XMRV retrovirus in most chronic fatigue syndrome (ME/CFS) patients appears to be a demarcating point in the history of this illness. The publication of the study in Science, the most prestigious scientific journal in the world, by a stellar cast of researchers from the National Cancer Institute, the Cleveland Clinic and the Whittemore Peterson Institute prompted a flood of stories across the major media outlets and scientific publications including Nature, Scientific American, the New York Times, (two articles), NPR, Fox News, LA Times, etc.

Amid concerns that the blood supply was contaminated the NIH officials announced they'd already held a conference on the issue. The Whittemore Peterson Institute rapidly conferred a new name for what it believes are a cadre of XMRV diseases - XAND (X Related Neuroimmune Disorder).
Questions were quickly raised concerning prevalence, transmission, testing, treatment, etc.

Check out the below sections for more information on this startling find. The first page - a very long - contains an overview of what I've learned thus far. Much of it, of course, is subject to change.

Immense congratulations and thanks, of course, go to the WPI.

Check out the below sections for more information on this startling find. The first page - a very long - contains an overview of what I've learned thus far. Much of it, of course, is subject to change.

Game Changer:the overview: what happened, prevalence, transmission, diagnosis, related research, etc. - http://aboutmecfs.org/Rsrch/XMRV.aspx

Treatment Options- potential treatment options - http://aboutmecfs.org/Rsrch/XMRVIntro.aspx

Resource Page- links to articles, blogs, websites - http://aboutmecfs.org/Rsrcs/XMRVResources.aspx

Discussion Center- Discuss XMRV/XAND here - http://forums.aboutmecfs.org/forumdisplay.php?f=54

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