ts=20
and others may find the info helpful. Angelina Gordon gave permission to=
=20
repost unedited only.
Lois Ventura
www.name-us.org
Thank you for your interest in the Whittemore Peterson Institute and our =
new=20
research findings on XMRV. We have been overwhelmed with both your=20
encouraging comments and the volume of email and traffic to our web site.=
=20
We are working on answering many of the general questions posed in the la=
st=20
few days. Individual specific questions will be evaluated and responded =
to=20
as appropriate.
- XMRV Testing: The number one request has been =93how do I get test=
ed=20
for XMRV?=94 The WPI is negotiating an agreement with a clinical laborat=
ory=20
to allow for limited testing. These limited test services will be made=20
available as soon as possible and we will provide information on this=20
website as to how the test can be requested. We cannot offer individual=20
testing and results from our research lab. Please check back to our webs=
ite=20
for updates.
- Research Studies: If you are interested in possibly being selected to=
=20
participate in ongoing or future WPI research studies, we are working on =
an=20
interactive form for our website. It should be available in the next few=
=20
days, and we encourage you to complete the form at Whittemore Peterson=20
Institute for Neuro-Immune Disease. While every study has specific=20
requirements and not all who volunteer will be accepted, your willingness=
to=20
participate is both crucial and deeply appreciated.
- Becoming a Patient: WPI is currently constructing our new home on =
the=20
campus of the University of Nevada School of Medicine. It will open in t=
he=20
summer of 2010. At this time we are not able to accept patients, but wou=
ld=20
be happy to add your name to our interest list. With the rapid pace of=20
research discoveries, we hope that there will be new treatment and=20
diagnostic options available when we celebrate the opening of the new=20
building.
The discovery of XMRV in ME/CFS patients opens an entire new avenue of=20
neuro-immune disease research and our discovery has brought to this field=
=20
world-renown immunologists and retrovirologists. Our team of collaborato=
rs=20
is working daily to translate our discoveries into new treatments as soon=
as=20
possible.
The discovery also raises many new questions about the role of XMRV in th=
ese=20
diseases, how it is spread, what new or existing treatments may help comb=
at=20
the virus, and how treating the virus might improve the health of patient=
s.=20
For access to what we know to date, please see our XMRV Q&A. We will upd=
ate=20
it regularly and keep you informed.
Whittemore Peterson Institute - XMRV Q & A
We know many of you have been waiting years for answers, accurate diagnos=
es=20
and some kind of effective treatments. All of us are dedicated to findin=
g=20
these, and we will continue to work as hard and as quickly as possible.=20
Please remain hopeful, and keep in contact with us via the website or ema=
il.=20
Making sure we have all of your contact information will ensure we are ab=
le=20
to contact you with further information as it becomes available to us.
Angelina Gordon
---------------------------------------------
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