Wednesday, October 5, 2011

ACT,NOT: (US) Official Announcement for Chronic Fatigue Syndrome Advisory Committee, Nov 8 & 9

I first saw this highlighted by the CAA (@PlzSolveCFS) on Twitter.

Note the deadlines for oral and written testimony and who they are
prioritising for oral testimony:
---
Time slots for public comment will be available on a first-come,
first-served basis and will
be limited to five minutes per speaker; no exceptions will be made.
Priority will be given to individuals who **have not** presented public
comment at previous CFSAC meetings.
---

Also, I think it is a new venue.

Tom Kindlon
Twitter: @TomKindlon
Google+: https://plus.google.com/112057171348448972761/

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http://bit.ly/oZjGTk i.e.
http://frwebgate3.access.gpo.gov/cgi-bin/TEXTgate.cgi?WAISdocID=uyPE9m/9/1/0&WAISaction=retrieve

[Federal Register: October 5, 2011 (Volume 76, Number 193)]
[Notices]
[Page 61706]
From the Federal Register Online via GPO Access [wais.access.gpo.gov]
[DOCID:fr05oc11-69]

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DEPARTMENT OF HEALTH AND HUMAN SERVICES


Meeting of the Chronic Fatigue Syndrome Advisory Committee

AGENCY: Department of Health and Human Services, Office of the
Secretary, Office of the Assistant Secretary for Health, Office on
Women's Health.

ACTION: Notice.

-----------------------------------------------------------------------

SUMMARY: As stipulated by the Federal Advisory Committee Act, the U.S.
Department of Health and Human Services is hereby giving notice that
the Chronic Fatigue Syndrome Advisory Committee (CFSAC) will hold a
meeting. The meeting will be open to the public.

DATES: The meeting will be held on Tuesday, November 8, 2011 and
Wednesday, November 9, 2011. The meeting will be held from 9 a.m. to 5
p.m. on November 8, 2011, and 9 a.m. to 4:30 p.m. on November 9, 2011.

ADDRESSES: Holiday Inn Capitol; Columbia Room; 550 C Street, SW.,
Washington, DC 20024; Hotel (202-479-4000).

FOR FURTHER INFORMATION CONTACT: Nancy C. Lee, MD; Designated Federal
Officer, Chronic Fatigue Syndrome Advisory Committee, Department of
Health and Human Services; 200 Independence Avenue, SW., Hubert
Humphrey Building, Room 712E; Washington, DC 20201. Please direct all
inquiries to cfsac@hhs.gov.

SUPPLEMENTARY INFORMATION: CFSAC was established on September 5, 2002.
The Committee shall advise and make recommendations to the Secretary,
through the Assistant Secretary for Health, on a broad range of topics
including (1) The current state of knowledge and research and the
relevant gaps in knowledge and research about the epidemiology,
etiologies, biomarkers and risk factors relating to CFS, and
identifying potential opportunities in these areas; (2) impact and
implications of current and proposed diagnosis and treatment methods
for CFS; (3) development and implementation of programs to inform the
public, health care professionals, and the biomedical academic and
research communities about CFS advances; and (4) partnering to improve
the quality of life of CFS patients.

The agenda for this meeting is being developed. The agenda will be
posted on the CFSAC Web site, http://www.hhs.gov/advcomcfs, when it is
finalized. The meeting will be recorded and archived for on-demand
viewing through the CFSAC Web site. It will be available by audio on
both days and the call-in numbers will be posted on the CFSAC Web site.

Public attendance at the meeting is open. Those attending the
meeting will need to sign-in prior to entering the meeting room.
Individuals who plan to attend and need special assistance, such as
sign language interpretation or other reasonable accommodations, should
notify the designated contact person at cfsac@hhs.gov in advance.

Members of the public will have the opportunity to provide oral
testimony on both days of the meeting; pre-registration for oral
testimony is required. Individuals who wish to address the Committee
during the public comment session must pre-register by Wednesday,
October 26, 2011, via e-mail to cfsac@hhs.gov. Time slots for public
comment will be available on a first-come, first-served basis and will
be limited to five minutes per speaker; no exceptions will be made.
Priority will be given to individuals who have not presented public
comment at previous CFSAC meetings. Individuals registering for public
comment should submit a copy of their oral testimony in advance to
cfsac@hhs.gov, prior to the close of business on Wednesday, October 26,
2011. If you wish to remain anonymous, please notify the CFSAC support
team staff upon submission of your materials to cfsac@hhs.gov.

If you do not submit your written testimony by the close of
business Wednesday, October 26, 2011, you may bring a copy to the
meeting and present it to a CFSAC support team staff member. Your
testimony will be included in a notebook available for viewing by the
public on a table at the back of the meeting room.

Individuals who do not provide public comment at the meeting, but
who wish to have printed material distributed to CFSAC members for
review should submit, at a minimum, one copy of the material to the
Designated Federal Officer at cfsac@hhs.gov prior to close of business
on Wednesday, October 26, 2011. Submitted documents should be limited
to five typewritten pages. If you wish to remain anonymous, please
notify the CFSAC support team staff upon submitting your materials to
cfsac@hhs.gov.

All testimony and printed material submitted for the meeting are
part of the official meeting record and will be uploaded to the CFSAC
Web site; this material will be made available for public inspection.
Testimony and materials submitted should not include any sensitive
personal information, such as a person's social security number; date
of birth; driver's license number, State identification number or
foreign country equivalent; passport number; financial account number;
or credit or debit card number. Sensitive health information, such as
medical records or other personal identifiable health information, or
any non-public corporate or trade association information, such as
trade secrets or other proprietary information also should be excluded
from any materials submitted.

Dated: September 30, 2011.
Nancy C. Lee,
Designated Federal Officer, Chronic Fatigue Syndrome Advisory
Committee.
[FR Doc. 2011-25739 Filed 10-4-11; 8:45 am]
BILLING CODE 4150-42-P

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