Monday, October 10, 2011

NOT: Free Webinar: Blood Safety Study Results

Webinar: Fri., Oct. 14.
Join us on Oct. 14, 2011 to hear from leaders of the Blood XMRV
Scientific Research Working Group about the results of their study
reported last month in Science. Free registration:
https://www1.gotomeeting.com/register/606452768

Background:
A report in Oct. 2009 linked CFS to the retrovirus xenotropic murine
leukemia virus-related virus (XMRV --
http://www.research1st.com/2011/09/13/the-x-factor/). In late 2009 the
Blood XMRV Scientific Research Working Group was formed by the U.S.
Department of Health and Human Services to design and carry out a study
to determine whether XMRV posed a threat to blood safety. The
multiphase, multicenter study has been supported by the National Heart,
Lung and Blood Institute and coordinated by the Department of Health and
Human Services Blood XMRV Scientific Research Working Group.

Results from Phase I of the study were reported in July 2010 at a
meeting of the Food and Drug Administration's Blood Products Advisory
Committee (BPAC). Phase II results were presented at a BPAC meeting in
December 2010 and in a webinar
(http://www.youtube.com/watch?v=3D0HynlkG0cVc). Phase III results were
published on Sept. 22, 2011 in Science
(http://www.research1st.com/2011/09/22/study-summaries/) and presented
at the IACFS/ME conference in Ottawa on Sept. 23, 2011. None of the 19
assays used by nine participating labs was able to distinguish
previously XMRV/MLV-positive CFS cases from healthy blood donors or
pedigreed negatives on the basis of results for XMRV or the larger
family of murine leukemia viruses for which they tested.

Study leaders will repeat the Ottawa presentation via a webinar with
open registration, thus enabling a larger number of stakeholders to hear
directly about the study design, results and conclusions. Drs. Michael
Busch, Graham Simmons and Steven Kleinman will discuss consequences for
blood safety and the understanding of these agents' role in CFS. Written
questions can be submitted at the time of registration or by
participants during the webinar.

Webinar Details:
Date: October 14, 2011
Time: 4:00 PM - 5:00 PM (Eastern time)
Speakers:
Graham Simmons, PhD of Blood Systems Research Institute

Michael Busch, MD, PhD of Blood Systems Research Institute

Steven Kleinman, BSc, MD of University of British Columbia

Free registration: https://www1.gotomeeting.com/register/606452768

~~~~~~~~~~~~~~~~~~~

Related Resources
For more information about the Sept. 22, 2011 report in Science of the
Phase III results, please visit
http://www.research1st.com/2011/09/22/study-summaries/

For more information about XMRV, please visit
http://www.research1st.com/2011/09/13/the-x-factor/

For a list of XMRV-related articles and publications, please visit
http://www.cfids.org/xmrv/resource-listing.asp

For information about blood donation by individuals with CFS, please
visit http://www.cfids.org/blood.asp

For the recording of the Phase II results webinar, please visit
http://www.youtube.com/watch?v=3D0HynlkG0cVc

*******************************
The CFIDS Association of America
working to make CFS widely understood, diagnosable, curable and
preventable

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