Saturday, December 31, 2011

ACT: Letter, Re: Sufferer welcomes ME research funds (Worcester News, 30 December 2011)

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Worcester News Letters.

We would join the Worcestershire ME Support Group in welcoming the =A31.6
million from the Medical Research Council (Sufferer welcomes ME research
funds, Worcester News, 30 December 2011 -
http://www.worcesternews.co.uk/news/9445419.Sufferer_welcomes_ME_research=
_funds/
)
if it were to be spent on biomedical research and for people with M.E.
(Myalgic Encephalomyelitis). Sadly, neither is accurate.

Firstly, some of the projects, said to be, are not biomedical and are
led by researchers who do not believe that M.E. is of physiological
origin. Secondly, it is unlikely that any conclusions drawn from these
studies could be applied to people with M.E. because, contrary to common
assertion and repetition, M.E. is not the same as Chronic Fatigue
Syndrome (CFS) and attempting to apply recommendations for treatment
from a different set of people is mostly ineffective and can be
potentially harmful for M.E. sufferers.

We shall make no progress until this wasteful expenditure on invalid and
unreliable experimental design is no longer tolerated. Precious funding
must first be allocated to separating M.E. as a discrete illness from
the indiscriminate CFS bundle, as a proper foundation for any work that
can be trusted.

Yours sincerely
drjohngreensmith@mecommunitytrust. org
Dr John H Greensmith
ME Community Trust. org

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