SITES AND USE IN NEWSLETTERS. PLEASE TWEET AND RE-TWEET ON TWITTER.
Letters to Belfast News Letter.
Before one can hope for a cure (=91I still believe in a cure for my son=92=
,
Belfast News Letter, 23 February 2012 --
http://www.newsletter.co.uk/lifestyle/features/i_still_believe_in_a_cure_=
for_my_son_1_3550493),
or a treatment which brings significant recovery from M.E. (Myalgic
Encephalomyelitis), it is first necessary to diagnose M.E. as a discrete
illness, quite separate from any other single condition which may be
subsumed under the indiscriminate collective term Chronic Fatigue
Syndrome (CFS),and/or to stop regarding M.E. as synonymous with the
whole CFS bundle which, astonishingly, is the norm worldwide.
There isn't a universally agreed diagnostic test for M.E., such as a
blood test or scan but to impose any treatment that was tested on people
who do not have some of the cardinal symptoms of M.E. - for example,
Post Exertion Relapse, that is, a delayed effect of 24-48 hours after
quite minuscule effort, often unwitnessed, as well as a kind of
dizziness, POTS (Postural Orthostatic Tachycardia Syndrome) and/or
Orthostatic Intolerance, that is difficulty in standing upright - on
M.E. sufferers, who have a quite different profile, is logically
untenable, scientifically invalid and unreliable, as well as, given the
anecdotal evidence of patient deterioration and research proof that
Cognitive Behaviour Therapy (CBT) is ineffective without relapse and
Graded Exercise Therapy (GET) makes a majority worse, morally reprehensib=
le.
M.E. sufferers are better off with no treatment at all - apart from that
from a sympathetic GP, for any particular symptom relief, such as pain
or sleep disturbance - including those offered in NHS clinics, than one
which is disappointingly ineffective and certainly one that may set them
back. And this is before the charlatans, purveying alternative and
radical techniques, which rely upon belief, get their hands on you and
your wallet.
Money spent on the unproven and potentially dangerous cart of treatment
would be more intelligently spent on the horse of biomedical treatment,
to discover the cause of what we are dealing with here, instead of
taking unwarranted risks with patient's health and lives.
Yours sincerely
drjohngreensmith@mecommunitytrust.org
Dr John H Greensmith
ME Community Trust.org
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