February, 23 2012 | Vol. 1, No. 4
In This Issue
FROM THE CEO'S DESK
NEW @ RESEARCH1st
CATALYSTS IN ACTION
FROM THE CEO'S DESK
Today's research announcements are made possible by donors to The Catalyst =
Fund, participants in the SolveCFS BioBank, all those who have shared links=
to our Research1st and Facebook posts, retweeted our messages and invited =
a family member or friend to support the cause we share. Today's announceme=
nts aren't about us; they're about YOU. Read more at http://www.research1st=
.com/2012/02/23/its-about-you.
~~~~~~~~~~~~~~~~~~~~
NEW @ RESEARCH1st
The Association announces its research institute without walls - eight tigh=
tly integrated projects led by experts in diverse disciplines. Rather than =
expending precious funds -- and time -- to construct a bricks-and-mortar fa=
cility, we have attracted top institutions to put their best minds to work =
immediately. We function as director and connector, networking carefully se=
lected projects, guiding progress and closely monitoring performance at eve=
ry step. Read more at http://www.research1st.com/2012/02/23/breaking-ground=
/.
This morning at 7 a.m., the Association issued a press release through PRNe=
wswire to announce the research institute without walls and a major gift fr=
om Laura Hillenbrand gift. The release was sent to top-tier media and medic=
al, health, science and research-related media outlets. Read the release at=
http://www.research1st.com/2012/02/23/press-release/.
The Wall Street Journal's Market Watch was the first to post the release (h=
ttp://www.marketwatch.com/story/the-cfids-association-of-america-breaks-gro=
und-on-its-institute-without-walls-to-transform-chronic-fatigue-syndrome-re=
search-2012-02-23) and Amy Dockser Marcus covered the announcements in the =
WSJ's Health Blog: "With help from author Laura Hillenbrand, drug repurposi=
ng comes to CFS" http://blogs.wsj.com/health/2012/02/23/with-help-from-auth=
or-laura-hillenbrand-drug-repurposing-comes-to-chronic-fatigue-syndrome/.
Subscribe to email updates (http://feedburner.google.com/fb/a/mailverify?ur=
i=3DResearch1st&loc=3Den_US) each time a new blog post is added to Research=
1st so you don't miss the latest updates!
~~~~~~~~~~~~~~~~~~~~
CATALYSTS IN ACTION
We have been honored to share stories about our Catalysts, supporters of Th=
e Catalyst Fund (http://www.cfids.org/about/thecatalystfund.asp). In scienc=
e, catalysts are substances that change the rate of chemical reactions. "Po=
sitive" catalysts speed a particular reaction. For the CFIDS Association, C=
atalysts speed transformation through their support of our research program=
. Today we pay tribute to the collective action that has led up to today's =
announcements. We'd also like to spotlight two individuals whose contributi=
ons are immensely important:
* Laura Hillenbrand's writing has earned her many honors. The critical accl=
aim and popularity of her books, "Seabiscuit" and "Unbroken", have given he=
r an unparalleled platform from which to raise awareness and deepen underst=
anding about CFS, a disease that has held her in its grip for 25 years. Tod=
ay, we are humbled to share news of her exemplary commitment to the cause -=
- a $250,000 gift to The Catalyst Fund. We are deeply honored by her trust =
and confidence, as we are the trust and confidence that every single donor =
demonstrates when they contribute to the Association.
* James York was the first person consented and enrolled in the SolveCFS Bi=
oBank. He was working as an underwater camera man and marine coordinator in=
the film industry when pneumonia turned into CFS in 2004. He participated =
in the BioBank as part of an odyssey to learn about CFS and cope with it. H=
e also donates to The Catalyst Fund.
Read more about Laura's and James' support of the Association at http://www=
.research1st.com/2012/02/23/its-about-you.
Become a Catalyst with a gift of any size to the Association. Your donation=
will support our transformative research program. Our secure online donati=
on center is available 24/7 at http://bit.ly/catalyst2012.
*******************************
The CFIDS Association of America
working to make CFS widely understood, diagnosable, curable and preventable
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