SITES AND USE IN NEWSLETTERS. PLEASE TWEET AND RE-TWEET ON TWITTER.
Fife Letters.
It is widely reported that Cognitive Behaviour Therapy (CBT) and Graded
Exercise Therapy (GET) can help M.E. (Myalgic Encephalomyelitis)
sufferers (Therapies 'moderately improve' CFS, Fife Today.co.uk, 26
February 2012 --
http://www.fifetoday.co.uk/news/health/behind-the-headlines/therapies_moderately_improve_cfs_1_1463092),
yet anecdotal, hard-knock, experience from M.E. sufferers together with
all research evidence (Twisk& Maes, 2009) show the opposite that CBT is
disappointingly ineffective, is usually followed by relapse and GET
makes a majority worse, some never recovering to where they where when
they started exercising.
Both positions cannot be true. So, why such polarised views? One
explanation is that the subjects tested may have some type of illness
that could be subsumed under Chronic Fatigue Syndrome but which is not
M.E. and, therefore, conclusions should not be applied to them.
But this is never put to the test because researchers are only funded
for CFS, or the conjoined hybrid, CFS/ME and those who assert that M.E.
is a discrete illness with a physiological cause, which can be
identified quite separately from CFS don't get a look in. This
organisation proposes conducting such research to settle the matter in
order to better inform GPs who are referring M.E. patients to something
potentially harmful.
Yours sincerely
drjohngreensmith@mecommunitytrust. org
Dr John H Greensmith
ME Community Trust. org
[Note: One of the targets of the M.E. Community Trust.org is to have at
least 6 letters submitted in response to every published news item or
letter, preferably from different authors in our pool of letter writers.
Replies should come not only from local readers of a particular
newspaper or magazine but from sufferers in all parts of the world. If
we do not achieve this target, I will not write and share my letters but
resign and work alone. This is not a spiteful statement of intention but
it is, firstly, preservation of my own energy and health and, secondly,
because without others supporting, it dilutes the numbers and distorts
the type of response, with only the same contributors. It may also be
assumed that lack of response implies approval of, or agreement with the
original. We shall try to build help notes for those who say they can't
do it but, for now, it only needs 4 or 5 sentences (copied from someone
else if you can think for yourself), e-mailed to the address given and
Bcc: to me, for inclusion with others on our website, whether they
publish or not. Make today the day you join our "letter writers pool" by
making it the subject line of an e-mail to
drjohngreensmith@mecommunitytrust. org]
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