CDC empiric criteria 2005 - Protest against CDC using it
------------------------------------------
Knowing that the petition against the CDC uses the CFS-Reeves-2005
definition has been available since April 15, 2009, I am surprised that =
only
around 1.700 have signed so far. The response from the international
ME-community is lame. I would have expected around 17.000-170.000 =
instead of
the few 1.700 signatures, knowing the worldwide number of people with =
ME.
The petition text is simple "CDC CFS research should not involve the
empirical definition (2005)", and I think nobody with ME could ever =
object
to that. I wonder where all the US inhabitants with ME are? Why do so =
few
sign? They should be very large in number - around a million.
Petition: "CDC CFS research should not involve the empirical definition
(2005)":
http://www.ipetitions.com/petition/empirical_defn_and_CFS_research/
Only sign once!
I think the petition is important, and will be like a "burial stone" for
lost research into ME. A historical document how CDC changed its course, =
and
how the whole world cried out loud. A remainder for future generations =
of ME
patients, to know that their predecessors really did protest against the
"burial" of CDC sponsored biomedical research into ME. I hope the =
petition
will stay on the web for ever in order to be a monument over lost =
voices,
and lost hope for patients worldwide hoping for a cure from their prison =
of
invalidity in their life-time.
/Kasper Ezelius, M.Sc., =D6rebro, Sweden, Northern Europe
------------------------------------------
| ME-f=F6reningen: http://me-foreningen.se
| ME-information: http://me-cfs.se
------------------------------------------
EARLIER DOCUMENT IN CHRONOLOGIC ORDER
Use the Canadian criteria 2003 for CFS in the USA. Kasper Ezelius. June =
22,
2008: http://me-cfs.se/dok/080622-Use-Canada-criteria-in-USA.pdf
Resolution in order to make cohorts less heterogeneous. Kasper Ezelius. =
1st
of September 2008: http://me-cfs.se/dok/080901-mod-cfs.pdf
How to categorize ME and CFS. Kasper Ezelius. 23 October 2008:
http://me-cfs.se/dok/081023-categorize.pdf
CFS is no longer CFS, and it was never ME. Kasper Ezelius. 5 December =
2008:
http://me-cfs.se/dok/081205-cfs-no-longer-cfs.pdf
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