SITES AND USE IN NEWSLETTERS. PLEASE TWEET AND RE-TWEET ON TWITTER.
Thanks to Action for M.E.'s Daily Press Summary for an update of
coverage of our, "Keeping a diary for M.E." longitudinal project and
introductory, "My M.E. diary 2012 trial", which do not appear online but
only newspaper versions.
Our introductory letter appears in these newspapers:
Dr John Greensmith of ME Community Trust invites people with M.E. to
start their new year diaries on a dedicated Facebook page called 'My
M.E. Diary 2012 Trial.' The aim: to record and share symptoms and
experiences for future reference and to make the collective voice of
M.E. more audible.
Western Daily Press, p 18
Western Mail (Cardiff), p 16-17
Manchester Evening News, p 25
News Letter (Northern Ireland), p 14
For those living outside the UK (or who were not paying attention in
geography lessons), these are newspapers serving major cities, quite
evenly distributed, as people with M.E. are socially and geographically.
It's a satisfying start.
Our press briefing is being circulated - and we have even been asked by
more than one Editor (Scotland is the most enthusiastic, so far) to send
one because they have M.E. groups in their areas and want to know more.
Thanks to all those who have already e-mailed for guidance to take part.
Please bear with us. It is already bigger and taking longer than we thought.
May I, therefore, appeal for more volunteers in all departments:
- Any help from people in the UK to help with administration to
promote here.
- "Ambassadors" in every part of the world to forward both letter and
press release to your national& local media OR get the details to us to
do. We have some promises in USA, Canada, Australia and parts of Europe
but we do need a lot more in the same and further afield.
- As many diarists as we can get. Remember one less may not only be
dilution but pollution.
Please bear with us. I think there will be delays but I'm sure it will
be worth it.
We are too stretched to answer individual questions and suggestions
(that is really what the "My M.E. Diary 2012 trial" is for) but we do
welcome all constructive criticism at paqs@mecommunitytrust.org and on
our Facebook page My M.E. Diary 2012 Trial -
http://www.facebook.com/pages/My-ME-Diary-2012-Trial/186206768135247
Best wishes
John
drjohngreensmith@mecommunitytrust.org
M.E. Community Trust.org
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