Chronic Fatigue Immune Deficiency Syndrome (CFIDS/CFS) is not a disease. CFS is a syndrome, as its name suggests.
Acquired Immune Deficiency Syndrome (AIDS) is not a disease. AIDS is a syndrome, as its name suggests.
Neither CFS nor AIDS are diseases. A syndrome is a syndrome (not a disease).
Myalgic encephalomyelitis (ME) is a disease, just like MS or malaria.
CFS and ME are not the same (one a syndrome, the other a disease).
CFS (syndrome) patients like to align themselves with ME (disease) patients because it helps give our syndrome the dignity and respect that it currently lacks (i.e., due to the silly, belittling name our government labeled it). I coined this phenomenon 'disease envy.'
I don't entirely disagree that CFS patients should do this. CFS patients have to understand however that we are stealing the name of a legitimate disease, ME. This is the reason why ME patients typically don't like to be lumped in with the CFS patients, because CFS patients' dilute the meaning of ME's very well-defined disease. I don't blame them. If I were a ME patient, I wouldn't want a CFS patient lumped in with me either.
There is currently a massive initiative to get CFS (syndrome) patients properly diagnosed as ME (disease) patients. Simply look-up: ME/ICC vs CFS/Fukuda. You will have to acknowledge however that not all CFS patients will quality for a ME diagnosis. I repeat CFS/ME terminology is not interchangeable, and is not accurate.
I see the big picture as to why CFS and ME should not be severed (at least until the initiative is complete), as there is a high correlation and probable same causal pathogen shared between the two maladies. Allied government (political) simply named us two different things so we don't roll-up into the same category (i.e., by ICD-coding) on a world-wide level, which would garner more attention then require their public response.
I always hear CFS patients saying "oh, they're so stupid. They don't understand my illness." The answer is "no, they are not." The people (political) who set it up this way are very, very smart. They mindfully constructed it this way. It utterly horrifies me that we pay these peoples' salaries (political) to mask the very problem that they created.
Allied government sold-out global public health for the sake of profit. If I weren't only 25% alive, I often wonder if I should 'Occupy' the White House.
AIDS and CFS (both syndromes) are 100% political paradigms.
These sham paradigms are pure lunacy. Neither CFS nor AIDS are even diseases. They are politically-defined syndromes. CFS and AIDS patients are not dealing with science. They are dealing with politics, and I demand a revolution.
Government works for you (not vice versa). Please write to Congress (i.e., your employees) demanding funding for CFS research, treatment, and services.
U.S. reps can be found here: http://www.senate.gov/general/contact_information/senators_cfm.cfm http://www.house.gov/representatives/
http://www.whitehouse.gov/contact/
Thank you for your time.
www.cfsstraighttalk.blogspot.com
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