Input on CDC CFS Strategic Research Plan
Between April 15 and July 30, 2009, CDC received just over 1,000 e-mails in
response to a request for input to its 5-year CFS strategic plan. Most of
the e-mails utilized material from the CFIDS Association of America's Web
site or supported CFIDS recommendations, reflecting the effectiveness of
CFIDS advocacy efforts. We greatly appreciate this overwhelming response,
since it provided an opportunity for members of the CFS community to share
their concerns.
Some emails from the general public provided comments specific to the
strategic research plan and we also received comments on the strategic plan
from two scientific societies (the International Association for Chronic
Fatigue Syndrome, and the American Academy of Environmental Medicine),
scientific investigators, health care providers, and patient advocacy groups
(CFIDS Association of America, Pandora, Connecticut CFIDS & FM Association,
National Women´s Health Network, Rocky Mountain CFIDS/FMS Association,
Phoenix Rising, Wisconsin ME/CFS Association, Share Care & Prayer, CFSActs,
National CFIDS Foundation, Invest in ME - UK).
CDC´s CFS research program is currently categorizing comments concerning the
strategic plan into specific subject areas.
To see the full CFS Public Health Research Program Draft 5-year Strategic
Plan,
click here http://www.cdc.gov/cfs/draft_5yr_research_plan.htm (links to a
page last modified on May 29, 2009).
Page last modified on September 1, 2009
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