may find it of interest. It lists the extra costs of M.E. people reported
with examples and percentages (pp. 5-7). It talks about people's care needs
with examples and percentages e.g. pp. 5-7. It talks about difficulties
people have had. Of course, support and benefit systems are different in
different countries but much of the information is generic information. Tom]
http://www.afme.org.uk/news.asp?newsid=685
Shaping the Future of Care Together consultation response
13 November 2009
Shaping the Future of Care Together consultation response
Today is the deadline for responding to the Government's Green Paper,
Shaping the Future of Care Together
http://www.dh.gov.uk/en/publicationsandstatistics/publications/publicationsp
olicyandguidance/dh_102338 . It sets out proposals for a National Care
Service for adults in England.
Action for M.E.'s consultation response
http://tinyurl.com/ybsku5t i.e.
http://www.afme.org.uk/res/img/resources/Future%20of%20Care%20report.pdf
has now been submitted. It was informed by a survey of 281 people.
Our report identifies the key issues which the Green Paper raises for people
with M.E. and calls on the Government to:
- commit to keeping the current disability benefits in place especially for
people with fluctuating conditions including M.E., who are already a
vulnerable and neglected group
- follow our recommendations for improvements to current social care
services
- ensure that disability benefits and social care are offered to all those
who need it.
The Government will draw on the data submitted to produce a White Paper in
2010.
Action for M.E. will be tracking the progress of any developments and will
be ready to respond.
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