SITES AND USE IN NEWSLETTERS
Short link: http://tinyurl.com/5szwxmu
May I suggest that as many as are able send an e-mail in reply,
expressing a variety of opinions. You may also leave a comment below the
letter online -- Trolls stay in your caves, please.
I have started the comments section with this one,
Thank you very much for publishing this letter about the crucial issue
of separating M.E. (Myalgic Encephalomyelitis) from "fatigue" and its
bookends "Chronic" and "syndrome", which so many of us believe is
impeding progress towards recovery of people who have been ill for
decades, not only M.E. sufferers but those with other illnesses who have
been bundled as CFS. Treatment recommendations such as Cognitive
Behaviour Therapy (CBT) and Graded Exercise Therapy (GET) have been
proved ineffective or even harmful and it has been an open door for
unregulated charlatans' unproven and costly interventions.
I have forwarded the web link to fellow sufferers and researchers
worldwide, including Dr Crawley, encouraging as many as can manage to
contribute a variety of opinions. I have suggested that Trolls stay in
their caves and we only have intelligent contributions on the basis of
which well-designed research can proceed. Thanks again, Evening Post,
for allowing a platform for the standard of debate rarely seen in
newspapers for general readership but reserved for scientific journals
to which fewer have access.
[Please don't take the bait of any Trolls, or be one yourself. Take some
time to compose your comment, don't send in high emotion and let us make
a difference.]
Best wishes
John
drjohngreensmith@mecommunitytrust.org
M.E. Community Trust.org
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