24 July 2011
CFSAC Meeting 10-11 May 2011 Recommendations now posted=20
The Recommendations resulting out of the 10-11 May meeting of the =
Chronic Fatigue Syndrome Advisory Committee (CFSAC) are now posted on =
the CFSAC website. Minutes for Day One had been posted at the end of =
June on the Videocast page, but are not currently available. Hopefully =
Minutes for both Day One and Two will be available shortly on the =
Meetings page ( http://www.hhs.gov/advcomcfs/meetings/index.html ).
Recommendations
http://www.hhs.gov/advcomcfs/recommendations/index.html
> http://www.hhs.gov/advcomcfs/recommendations/05112011.html
CFSAC Recommendations - May 10-11, 2011=20
The specific recommendations articulated by the Committee are:
1.. CFSAC rejects current proposals to code CFS in Chapter 18 of =
ICD-10-CM under R53,82: Chronic fatigue, unspecified Chronic fatigue =
syndrome NOS. CFSAC continues to recommend that CFS should be classified =
in ICD-10-CM in Chapter 6 under "diseases of the nervous system" at =
G93.3, in line with ICD-10 and ICD-10-CA (the Canadian Clinical =
Modification), and in accordance with the Committee's recommendations of =
August 2005. CFSAC considers CFS to be a multi-system disease and =
rejects any proposals to classify CFS as a psychiatric condition in US =
disease classification systems. (Note: no disease classification system =
under HHS' control proposes to move or to include CFS in or among =
psychiatric conditions.)
2.. MS/CFS is an illness with enormous economic and human costs. The =
April 2011 NIH State of Knowledge Workshop indentified a number of gaps =
in what is known about the illness. To address these gaps warrants an =
interagency effort comprising, but not limited to, NIH, CDC, and AHRQ. =
Further, the focus should be on interdisciplinary discovery and =
translational research involving interacting networks of clinical and =
basic science researchers. Areas to be examined would include the =
following: identification of patient subsets for detailed phenotyping =
and targeted therapeutic interventions, biomarker discovery, systems =
biology approaches and disability assessment.
To facilitate the above goal, CFSAC recommends that ME/CFS research =
receive funding commensurate with the magnitude of the problem and that =
the NIH (and/or other appropriate agencies) issue an RFA specifically =
for ME/CFS.
3.. CFSAC asks that HHS organize a workshop to engage experts in =
disability assessment, the outcome being a document useful to patients =
and adjudicators which could contribute to more efficient and fair =
disability process.
Read documents related to the May 10-11, 2011 meeting:
CFSAC Recommendations Since September 2004 (pdf)=20
http://www.hhs.gov/advcomcfs/meetings/presentations/cfsac_reccommendation=
s_chart_may_2011_mtg.pdf =20
CFSAC May 2011 Recommendations (pdf)=20
http://www.hhs.gov/advcomcfs/meetings/presentations/cfsac-recommendations=
_201105.pdf =20
CFSAC May 2011 Recommendations to Secretary (pdf )=20
http://www.hhs.gov/advcomcfs/meetings/presentations/cfsac-recommendations=
-to-secretary_201105.pdf =20
Secretary's Response to CFSAC Advisory Committee Chair for May 2011 =
Meeting (pdf, )
http://www.hhs.gov/advcomcfs/meetings/presentations/cfsac-secretarys-resp=
onse-201105.pdf=20
Suzy Chapman
_____________________
me.agenda@virgin.net
http://dsm5watch.wordpress.com
http://meagenda.wordpress.com
http://www.facebook.com/MEagenda
http://twitter.com/MEagenda
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