There has been much discussion about how the new international =
definition by Dr. Bruce Carruthers et al fits with the 2003 Canadian =
ME/CFS definition and that everyone is asking for a response by the =
National ME/FM Action Network..
Please understand that it is not up to the National ME/FM Action =
Network to either accept or reject the definition nor how it fits with =
the 2003 definition. This is a matter that only the scientific =
community can discuss and decide upon. Our Network's responsibility =
would be to follow their lead.
The International Association for CFS/ME (IACFS/ME) www.iacfsme.org who =
has over 500 scientists, researchers and medical members will shortly =
be issuing an announcement on this matter. It will also be discussed at =
the IACFS/ME research and clinical conference our organization is =
hosting in September.
The definitions will be discussed in September. However, before an =
official response is possible, we need to know what the response is to =
the new definition and are closely monitoring the doctors and scientific =
communities response. Presently it is being discussed by those in =
authority as you have to realize that it is not our Network who can make =
that decision nor any other group.
The responsibility of the National ME/FM Action Network is and will =
always be to do what is best for our ME/CFS and FM population by keeping =
up to date on research and treatment and give support to those in need =
of same.
Lydia
Lydia E. Neilson, M.S.M. , Founder
Chief Executive Officer
NATIONAL ME/FM ACTION NETWORK
512 - 33 Banner Road
Nepean, ON K2H 8V7 Canada
Tel. 613.829.6667
Fax 613.829.8518
Email: mefmaction@ncf.ca
www.mefmaction.com
=20
NATIONAL ME/FM ACTION NETWORK - HOST OF THE IACFS/ME INTERNATIONAL =
RESEARCH & CLINICAL CONFERENCE - OTTAWA, CANADA
SEPTEMBER 22 - 25, 2011
For details on agendas and registration, please visit: =20
Member of www.iacfsme.org
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