Co-Cure List Republish: NOTICE: Coalition4ME/CFS ICD Announcement

[Submitted by Mike Munoz <funinco@comcast.net>]

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Please see below announcement from the Coalition 4 ME/CFS

We will be presenting the ICD proposal on Wednesday in Maryland

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coal banner2
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Coalition 4 ME/CFS
ICD Announcement
September 12, 2011

large_box_top.gif
*/Coalition 4 ME/CFS Proposal to Reclassify
Chronic Fatigue Syndrome (CFS) in the ICD-9-CM and ICD-10-CM
Accepted for Review by the National Center for Health Statistics /*
large_box_bottom.gif

/Logo only copy 5*FOR IMMEDIATE RELEASE*
Contact: Corin Ramos, Walson Communications
Cell Phone: 714-865-4147
Email: corin@walsonpr.com

/*Coral Gables, FL, September 12, 2011* =E2=80=93 The Coalition 4 ME/CFS =
on July=20
15, 2011, submitted a proposal=20
<http://cts.vresp.com/c/?Coalition4MECFS/546370afcb/9e980ecaab/535ca380a0=
>to=20
the National Center for Health Statistics (NCHS) for reclassification of=20
chronic fatigue syndrome (CFS) as a neurological disease in the United=20
States International Classification of Diseases-10-CM (ICD-10-CM) and=20
International Classification of Diseases-9-CM (ICD-9-CM). The proposal=20
was accepted for review at the upcoming meeting of the Coordination and=20
Maintenance Committee at the Center for Medicare Services=20
<http://cts.vresp.com/c/?Coalition4MECFS/546370afcb/9e980ecaab/74442f536f=
> (CMS),=20
in Baltimore, Maryland, on September 14, 2011.
=E2=80=8B
The proposal request is supported by past and current recommendations=20
from the CFS
Advisory Committee (CFSAC), an advisory committee, created under the=20
Federal Advisory Committee (FACA) statue and regulations. The proposal=20
request is to reclassify CFS as a neurological disease in the ICD-9-CM=20
and ICD-10-CM in recognition of the current scientific understanding of=20
CFS and its classification in the ICD-10 by the World Health=20
Organization (WHO). =E2=80=9CThe goal of this proposal is to ensure align=
ment=20
with ICD-10 under WHO and the clinical modifications embraced by other=20
countries, and to ensure alignment with the best current case definition=20
for CFS, which includes both viral and bacterial triggers,=E2=80=9D state=
d Mike=20
Munoz, a member of the Coalition 4 ME/CFS steering committee.
=E2=80=8B
The WHO publishes the ICD, which is used by more than 100 countries to=20
standardize how diseases are classified. In the ICD-10, which is the=20
current global standard, myalgic encephalomyelitis (ME), post viral=20
fatigue syndrome (PVFS), and CFS are all classified under Neurological=20
Diseases. =E2=80=9CThis proposal is a stepwise change that will separate =
cases=20
of ME/CFS from cases of unspecified chronic fatigue and depression, and=20
in the process, signal to the medical community the seriousness of this=20
disease,=E2=80=9D said Lori Chapo-Kroger, another steering committee memb=
er.
=E2=80=8B
It is estimated by the Centers for Disease Control and Prevention (CDC)=20
that at least one million individuals in the U.S. and 17 million=20
worldwide (National Institutes of Health) are stricken with this=20
debilitating, disabling, and sometimes fatal disease. The annual=20
economic cost in the U.S. for ME/CFS according to a recent study=20
published in the Journal of Dynamic Medicine-Bio Med Central, by Jason=20
et al., from DePaul University is estimated to be between 18 and 23=20
billion dollars. Marly Silverman, another member of the current=20
Coalition 4 ME/CFS steering committee added: =E2=80=9CThe approval for re=
view of=20
this historical proposal by the NCHS, highlights the fact that current=20
science is bringing government health agencies, researchers and patient=20
advocacy groups together to collaborate, leading to results that will=20
improve quality of life for patients afflicted with ME/CFS in the U.S.=E2=
=80=9D
=E2=80=8B
The Coalition 4 ME/CFS supports our scientific research community in the=20
efforts of retiring the name chronic fatigue syndrome and the acronym=20
CFS. It supports a worldwide collaborative and accepted case definition,=20
with well-defined diagnostic criteria and guidelines for implementation=20
of well-devised treatment standards. Although the coalition recognizes=20
pragmatically the effort and time needed to drive this welcome change=20
across all clinical, research, legal, disability, and insurance=20
disciplines in the U.S., we believe our ICD-10-CM and ICD-9-CM proposal=20
initiative contributes to a productive timely result.
=E2=80=8B
We acknowledge and express gratitude to Mary Dimmock, who prepared the=20
proposal request with solid expertise and diligence on behalf of the=20
Coalition 4 ME/CFS. We thank the Coalition 4 ME/CFS steering committee=20
for their unwavering commitment to this project. We acknowledge CFSAC=20
members who have voted for the recommendations that this proposal=20
supports. We appreciate the support of physicians and researchers who=20
provided expert input to the proposal.
=E2=80=8B
To read the proposal and get more information, visit the coalition=20
website at Coalition4ME/CFS.org=20
<http://cts.vresp.com/c/?Coalition4MECFS/546370afcb/9e980ecaab/015bbf49d8=
>
=E2=80=8B
*About NeuroEndocrineImmune Diseases (NEIDs)*
NeuroEndocrineImmune diseases include fibromyalgia (FM), chronic Lyme=20
disease (CLD), multiple chemical sensitivities (MCS), Gulf War illnesses=20
(GWI), and chronic fatigue syndrome (CFS). CFS is also known in Europe=20
and other countries as myalgic encephalomyelitis (ME).
=E2=80=8B
*About Coalition 4 ME/CFS*
Coalition4ME/CFS=20
<http://cts.vresp.com/c/?Coalition4MECFS/546370afcb/9e980ecaab/37a19a5449=
> was=20
founded on March 1, 2011. The mission of the coalition is to engage and=20
mobilize governmental health agencies, the private biomedical industry,=20
researchers, health care providers, and the public toward finding a cure=20
for ME/CFS and related NeuroEndocrineImmune diseases. Visit us on=20
Facebook.=20
<http://cts.vresp.com/c/?Coalition4MECFS/546370afcb/9e980ecaab/4820c541d9=
> Follow=20
us on Twitter=20
<http://cts.vresp.com/c/?Coalition4MECFS/546370afcb/9e980ecaab/9164dae18a=
>
=E2=80=8B
Coalition members are the Chronic Fatigue Syndrome/Fibromyalgia=20
Organization of Georgia, Inc., CFS Knowledge Center, CFS Solutions of=20
West Michigan, PANDORA, Inc. (Patient Alliance for Neuroendocrineimmune=20
Disorders Organization for Research & Advocacy, Inc.), Phoenix Rising,=20
Rocky Mountain CFS/ME & FM Association (RMCFA), Vermont CFIDS=20
Association, Inc., and Wisconsin ME/CFS Association, Inc.=E2=80=8B
------------------------------------------------------------------------

/*Contact:*

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Coalition 4 ME/CFS

*:: *Join our email list=20
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>

*:: *website=20
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>

*:: *email: info@coalition4MECFS.org <mailto:info@coalition4MECFS.org>

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>
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>

/
------------------------------------------------------------------------

/Coalition 4 ME/CFS Steering Committee:/
/Mike Munoz/
/Executive Director/
/Rocky Mountain CFS/ME & FM Association (RMCFA)/
/Marly Silverman/
/Founder/
/PANDORA - Patient Alliance for Neuroendocrineimmune Disorders=20
Organization for Research & Advocacy, Inc/
/Lori Chapo Kroger/
/President and Founder/
/CFS Solutions of West Michigan

/
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NOTICE: Coalition4ME/CFS ICD Announcement

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