ME
(myalgic encephalomyelitis) - hit the internet with a bang. This wasn=92t j=
ust
an attempt to give CFS a new and better name - it was far bolder than that;
this was an attempt to introduce a =91new=92 disorder to the medical commun=
ity -
a disorder the authors feel has been subsumed under an overly broad
definition for chronic fatigue syndrome for decades.
That Marj Van de Sande helped lead the way for this =91new=92 disorder was =
no
surprise. The world is rife with great ideas but most of us lack a bit in
the follow through department but follow through is clearly no problem for
Marg. An ME patient for over 20 years, she and Dr. Carruthers have, through
their editorship of two important papers, the Canadian Consensus Criteria
for ME/CFS, and the International Consensus Criteria for ME/CFS, played a
seminal role in promoting not one but two of the most important ideas to hi=
t
the ME community in the last decade into play....
Check out this interview with co-editor of the ICC and patient advocate Mar=
j
Van de Sande as she talks about how the ICC came to be, why it was created
and what she hopes it will accomplish in
Re-inventing =91CFS=92- the ICC for ME: the Marj Van de Sande
Interview<http://forums.phoenixrising.me/content.php?477-Re-inventing-%E2%8=
0%98CFS%E2%80%99-the-International-Consensus-Criteria-for-ME-the-Marj-Van-S=
ande-Interview#new_comment>
on Phoenix Rising..
--=20
*
Cort Johnson
Phoenix Rising* - A non-profit 501(c)(3) charitable organization dedicated
to improving the lives of people with chronic fatigue syndrome (ME/CFS) and
other neuroendocrineimmune disorders
[image: Preview
Image]<https://www.paypal.com/cgi-bin/webscr?cmd=3D_s-xclick&hosted_button_=
id=3D5BL7MGLRCA2AC>
*
*
- *Website <http://aboutmecfs.org>*
- *Forums <http://forums.aboutmecfs.org>*
**
---------------------------------------------
Send posts to CO-CURE@listserv.nodak.edu
Unsubscribe at http://www.co-cure.org/unsub.htm
---------------------------------------------
Co-Cure's purpose is to provide information from across the spectrum of
opinion concerning medical, research and political aspects of ME/CFS and/or
FMS. We take no position on the validity of any specific scientific or
political opinion expressed in Co-Cure posts, and we urge readers to
research the various opinions available before assuming any one
interpretation is definitive. The Co-Cure website <www.co-cure.org> has a
link to our complete archive of posts as well as articles of central
importance to the issues of our community.
---------------------------------------------
