with the Esther Crawley LP course currently taking place in England,
as participants are told that if they do not get better then it is
their own fault.
For more information and comments from people who have taken the
course, see- http://health.groups.yahoo.com/group/MEActionUK/message/69001
--------------------------------------------------------------
13-year-old attempted suicide by ME courses
The family hoped 13-year-old with fatigue syndrome should be well on
course "Lightning Process". Instead, he breakdown and tried to kill
herself.
Camilla Sand
camilla.sand@nrk.no
Posted 26/11/2011 7:21 p.m..
After only three days on the "Lightning Process" course, declare
chronically exhausted themselves healthy. When they have learned a way
to change the body's way of reacting to.
It is not until recently that ME patients have been open with their
negative experiences with the treatment program, "Lightning Process",
also called LP.
On the blog ME-news puts people back desperate post about their
experiences. Among them, a father who almost lost her son in her
suicide.
To NRK.no he tells of the attempt to get his son well.
Was recommended course of physician
In October 2008, the boy diagnosed with ME. The family from Southern
was told about long waiting times at the hospital, where further
investigation would take place.
The family asked the doctor at the hospital for advice on what they
could carry out in the waiting time.
The answer from the superior was that many had good experiences with
the treatment method "Lightning Process" at the Active Process in
Sandvika.
It was the hospital who recommended this, then it must be something in
it, says the father.
They immediately set in the process of gathering information about
what LP was, and was excited to see that almost 100 percent recovered.
Although they were aware of the ME Association did not support the
treatment, they decided to try.
Three day course costing 15,000 crowns.
Did breakdown two weeks after
The course took the boy, who was barely 13 years of age along with
five other young girls and their parents.
=96 The council have a Hallelujah-mood on the course, and some of the
first things he learned was that if he was not fresh as it was his own
fault, says the father of NRK.no.
At the end of the course was the boy asked if he was healthy.
=96 "No, but I have been much better," he said.
After completing the course, the boy experienced a slight improvement,
but two weeks later he collapsed. Her mother found her son in the room
one morning where he had tried to commit suicide.
=96 He could not get well, and felt it was his own fault. He was upset
that he had not been able to carry out suicides, says father.
- Could be worse after LP-course
=96 After a period of recovery after the "Lightning Process" is any
worse than they were in the first place. Some significantly worse,
says Dr. Barbara Baumgarten-Austin in ME / CFS Department of Oslo
University of NRK.no.
Many of her patients have tried "Lightning Process".
=96 Patients can often tell them at first regarded as healthier than
they really were, because they wanted so strongly that the course
would help. Many are struggling also with guilt because they have not
improved, she says.
Those who are worse, is, according to Baumgarten, Austin prolonged
worse. In the worst case, she knows, the patient has been worse in
three years.
She is aware that absolutely no scientific evidence that "Lightning
Process" works.
Got offered a new course for free
A few days after her son's suicide attempt, called the father of the
course leader and told him what had happened.
His fervent appeal to her was that they had to stop giving this type
of course for ME sufferers, particularly children and young people.
Her answer was to offer the boy a new course - free.
Even two years later took active process contact the family to offer
his son a follow-up course. The father refused and asked the NOK again
urged them to stop offering LP course to ME-ill children.
=96 I experienced no humility and no apology, says he NRK.no.
He says he is still waiting for an apology from the Active Process,
who held the course.
A form of exercise, not treatment
Vibeke C. Hammer, former Active Process (now Manager Health ) writes
in an e-mail to NRK.no that there is no basis to discuss issues around
the Lightning Process as the treatment program.
"LP is a form of exercise and are not approved for the treatment of
any disease diagnoses. (...) We are working with symptom relief for
patients to have a better life, "she writes.
"The issue you raise about method for the treatment of disease is
therefore not relevant to the LP," she writes on.
Hammer will not comment on matters relating to individual
participants, but writes that it generally is terribly sad and tragic
when a child has progressed so far that they are trying to take his
own life.
Have items ME sufferers have benefited from
It was Dr. Vegard Bruun Wyller, who told the family of 12-year-old
about the Lightning Process.
NRK.no have asked Bruun Wyller if he has no qualms about sending ME
sick children on the long-course when you know that someone is ill of
it, and even tried to take his own life.
He admits that he has advised patients to try the "Lightning Process",
but would not comment on individual cases.
=96 I can see the concerns with treatments that are not scientifically
documented, and has commercial interests such as this course. At the
same time of treatment elements of cognitive behavioral therapy, which
we have seen several examples of ME patients have benefited from, says
he NRK.no.
Bruun Wyller confirms that he has received complaints from ME
sufferers he has recommended LP, which either has not been younger, or
who have been sicker of LP.
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