Wednesday, November 30, 2011

NOTICE,ACT: Videos of CFS Advisory Committee Nov. 8 & 9 Meeting

The official videos of the November 8 and 9, 2011 Chronic Fatigue Syndrome =
Advisory Committee (CFSAC) meeting are now available via YouTube at the fol=
lowing link:=0A=0Ahttp://www.youtube.com/playlist?list=3DPL600CB038194B4593=
=0A=0A=0APresentations
by invited speakers in PDF format (as well as the vi=
deos) may be accessed here:=0A=0Ahttp://www.hhs.gov/advcomcfs/meetings/pres=
entations/11082011.html=0A=0A=0ADon't
forget that anyone who wants to send =
the following message to the Federal officials present at the meeting,=0A=
=0A"Double the current NIH funding for extramural research. Priority should=
be given to research on biomarkers and potential pathogens as well as clin=
ical trials.=A0=A0Take down information on the CDC's CFS website stating te=
sting for pathogens and biomarkers is "experimental and theoretical" and th=
at GET and CBT are appropriate treatments."=0A=0A=0Amay do so simply by sig=
ning the below petition which will result in emails being sent to the relev=
ant parties. =A0This is the message that was presented by most testifying a=
s well as the public representatives on the CFSAC. (Your email address is n=
ot shared if that is a concern.)=0A=0Ahttp://www.change.org/petitions/apolo=
gize-for-not-responding-appropriately-to-the-mecfs-epidemic=0A=0A=0A--Liz
W=
illow

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