the Danderyd hospital in the area of Stockholm of Sweden comments the=20
PACE trial. His letter has been published in a blog operated by a=20
different person. He has made interesting comparisons to outcomes of=20
treatments of MS patients.
http://www.dagensmedicin.se/Pages/Blogs/BlogPostView.aspx?id=3D104123
Here is a translation of a part of the letter of Per Julin:
"I interpret the findings of the PACE-trial in a different way than the=20
authors. The interpretation that CBT and GET are efficient (nearly=20
curative) treatments of ME/CFS is not correct. The effect on the SF-36=20
physical function is moderate (to say the least) after a whole year of=20
training (in a small but well done study of MS patients one could see=20
the same effect within 6 weeks with a different form of treatment [1]. //
//
//In the PACE-tial the final are results after one year of training in=20
terms of the SF-36 physical function still below the mean for MS=20
patients who had their disease in average during 11 years [2].//
////
//Our interpretation is that the study neither APT (adaptive pacing=20
theraphy), GET or CBT can cure ME - the positive effect is very small in=20
terms of duration - they actually react worse to the training than MS=20
patients can do. Earlier studies have also shown more negative data for=20
CBT and GET for ME/CFS [3]."/
/
//
//
//References:
/1. J Rehabil Res Dev. 2011;48(7):881-90.
Elliptical exercise improves fatigue ratings and quality of life in=20
patients with multiple sclerosis.
Huisinga JM, Filipi ML, Stergiou N./
http://www.ncbi.nlm.nih.gov/pubmed/21938671
Free full text: http://www.rehab.research.va.gov/jour/11/487/page881.html
2. Mult Scler. 2011 Oct;17(10):1238-49. Epub 2011 Jun 13.
Patient characteristics and determinants of quality of life in an=20
international population with multiple sclerosis: assessment using the=20
MusiQoL and SF-36 questionnaires.
Fern=C3=A1ndez O, Baumstarck-Barrau K, Simeoni MC, Auquier P; MusiQoL stu=
dy=20
group.
http://www.ncbi.nlm.nih.gov/pubmed/21669936
3. Clin Rheumatol. 2011 Mar;30(3):381-9. Epub 2011 Jan 15.
Health-related quality of life in patients with chronic fatigue=20
syndrome: group cognitive behavioural therapy and graded exercise versus=20
usual treatment. A randomised controlled trial with 1 year of follow-up.
N=C3=BA=C3=B1ez M, Fern=C3=A1ndez-Sol=C3=A0 J, Nu=C3=B1ez E, Fern=C3=A1nd=
ez-Huerta JM, God=C3=A1s-Sieso T,=20
Gomez-Gil E.
http://www.ncbi.nlm.nih.gov/pubmed/2123462
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