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Dutch doctors blunder by dismissing symptoms in XMRV positive ME patient as
psychosomatic and fail to diagnose Metastatic Breast Cancer.
Physicians missed the diagnosis Cancer in Dutch patient with ME/CFS, becaus=
e
her symptoms were supposedly =91psychosomatic=92.
Great Britain, Belgium and the Netherlands are the Bermuda triangle when it
comes to ME/CFS. The disease ME vanished from the earth when the so called
disorder CFS made its unfortunate entry. Nowadays patients with ME aren=92t
taken serious anymore when they consult their physician with new symptoms.
Influenced by the psychobabble of so called CFS-experts they tend tot think
=91It is all in the patients=92 heads=92.
The choice of the healthcare-system to use this approach to ME/CFS has
disastrous consequences and one of the patients write:
=93I=92m angry with the Dutch healthcare-system, angry about the arrogance =
of
Dutch physicians in regard to patients with ME/CFS. Even in the light of al=
l
the counter facts they persist in their idea that ME/CFS isn=92t a real
disease, but a psychosomatic disorder.=94
One of the members of a Dutch ME/CFS forum maintained a diary/weblog for
more than a year. For more than nine months she developed serious physical
symptoms. After she got diagnosed with XMRV by dr. De Meirleir in Belgium, =
a
renowned ME/CFS specialist, her health declined fast. She soon felt to weak
to travel the long distance to Brussels and thereforesought help in her
immediate environment.
Every physician she went to visit, sended her back home despite the abnorma=
l
bloodresults and the fact that she was XMRV+. The lumb in her breast was at
first sight perfectly normal and the pain she was complaining about was =91=
all
in her head=92, they reassured her. When she couldn=92t eat anymore, she st=
arted
losing a lot of weight. And while she became weaker day by day the
physicians claimed she =91didn=92t want to=92 eat. After all ME/CFS is a
psychological disorder. =93Therapists should help CFS patients overcoming
obstacles to change, such as maladaptive coping styles en personality
aspects.=94 One should definitely not execute more examinations when these
patients complain, because it would confirm their sickness-believes. The
fact that XMRV is linked to certain types of cancer, Ila Singh found it in =
a
percentage of breastcancers, was dismissed. They didn=92t want to go throug=
h
the hassle of a breastscan and she was encouraged to eat a bit more.
Fortunately this patient was determined to find a physician who would take
her symptoms serious. After the martyrdom of over nine months, she finally
found a physician who wanted to examine the increasing lumb in her breast.
The diagnosis: Breast Cancer, by now spread in Lymph glands. The physians
she consulted refused over and over again to feed her by stomach tube and
now the patient lost so much weight that she is to weak to start the
necessary treatment right away.
Physicians, you who claim that ME/CFS is not a serious disease, should be
ashamed. You play with human life. You are not living up to the oath you
once have taken. This is criminal behavior!=94
We hope our friend and fellow ME-sufferer will overcome this tremendous
hurdle you have put there. She is one hell of lady, an example for all of
us. If things turn out bad, then we know who to blame, we know who is
responsible. It=92s a crime against humanity that physicians continue to
believe that ME/CFS patients are hypochondriacs. Besides the fact that this
disease is real and devastating and mortal in some cases, it is unacceptabl=
e
that the lack of examination and treatment by physicians is =91killing=92 t=
oo.
Thanks to Felixloena for the Dutch article. In honour of our beloved frien=
d
Niessie.
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