Tuesday, August 23, 2011

ACT: e-petition: Make public all documents relating to Myalgic Encephalomyelitis (M.E.) and Chronic Fatigue Syndrome (CFS) - Closing Date 23 February 2012

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/*[Note: Please delete any of our e-mail addresses ending
@mefreeforall.org, which will expire shortly and amend your address book
as follows: drjohngreensmith@mecommunitytrust.org for e-mails which ONLY
drjohn can deal with and info@mecommunitytrust.org, which will be
checked regularly by drjohn and the team. Family and personal friends
also have personal e-mail addresses for matters other than M.E., which
have not changed. Thanks.] */

The British Government has introduced a new system of e-petitions,
whereby petitions achieving more than 100,000 signatures will be
eligible for debate in the House of Commons.

A test precedent has been set with the target being exceeded by
signatories to a petition calling for full disclosure of all government
documents relating to the Hillsborough football stadium disaster of
April 1989.

Please note: To sign you must be a citizen of, or usually resident in,
the UK. We hope, however, that the M.E. Community worldwide will
observe, learn from the experience and, perhaps, replicate the
initiative in their own country. We may also raise a similar petition on
a site which does accept signatories from all countries after we have
seen the outcome of this one in the UK.

The short title is:

Make public all documents relating to Myalgic Encephalomyelitis (M.E.)
and Chronic Fatigue Syndrome (CFS)

The e-petition detail is:

We the undersigned request that all information relating to M.E.
(Myalgic Encephalomyelitis) and CFS (Chronic Fatigue Syndrome),
including correspondence with the medical profession (Ref: BN 141/1),
held in the National Archives, Kew, UK, as a closed document and not
available for public access, after 78 years, until 2072, is made freely
available.

It is believed that such revelation may yield clues to a better
understanding of a physical cause or underlying disease process of a
discrete neurological illness, Myalgic Encephalomyelitis, unjustifiably
bundled within the collective diagnosis CFS or taken to be synonymous
with it This might, in turn, lead to effective treatment and hopefully a
cure or significant recovery for this dreadfully debilitating illness,
which affects millions of people worldwide.

The closing date is: 23 February 2012.

The target is more than 100,000 signatures. Please do sign and encourage
others to sign by forwarding the link
http://epetitions.direct.gov.uk/petitions/14242 and short link
http://tinyurl.com/3dcdenf**as widely as possible to increase our
chances of hitting the target. Do send the link to our fellow sufferers
abroad, even though they are not eligible to sign.

Footnote: You may be aware that Dr John Greensmith is currently
suffering a major relapse of M.E. and having to take bed rest. Much of
his correspondence is prepared by Trust volunteers for him to finally
approve or execute. We welcome more volunteers, from any part of the
world, to help not only with this petition and the publicity it will
generate but also other projects. Those with existing skills to offer,
prepared to learn and work remotely are invited to write with their
offers to his address, drjohngreensmith@mecommunitytrust.org or to
info@mecommunitytrust.org

Best wishes
John
drjohngreensmith@mecommunitytrust.org
Dr John H Greensmith
ME Community Trust.org

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