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>>>>> Help ME Circle <<<<
>>>> 5 July 2011 <<<<
Editorship : j.van.roijen@chello.nl
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ESME European Society for ME
ESME IVWZ
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Dutch doctors blunder by
dismissing symptoms in
XMRV positive ME patient
as psychosomatic and fail
to diagnose Metastatic
Breast Cancer.
Physicians missed the diagnosis Cancer in
Dutch patient with ME/CFS, because her
symptoms were supposedly
'psychosomatic'.
Great Britain, Belgium and the
Netherlands are the Bermuda
triangle when it comes to ME/CFS.
The disease ME vanished from the
earth when the so called disorder
CFS made its unfortunate entry.
Nowadays patients with ME aren't taken
serious anymore when they consult their
physician with new symptoms. Influenced
by the psychobabble of so called
CFS-experts they tend tot think 'It is all in
the patients' heads'.
The choice of the healthcare-system to
use this approach to ME/CFS has
disastrous consequences and one of the
patients write:
*I'm angry with the Dutch
healthcare-system, angry about the
arrogance of Dutch physicians in regard
to patients with ME/CFS. Even in the light
of all the counter facts they persist in
their idea that ME/CFS isn't a real
disease, but a psychosomatic disorder.*
One of the members of a Dutch ME/CFS
forum maintained a diary/webblog for more
than a year.
For more than nine months she developed
serious physical symptoms. After she got
diagnosed with XMRV by Dr. Kenny De
Meirleir in Belgium, a renowned ME/CFS
specialist, her health declined fast. She
soon felt to weak to travel the long
distance to Brussels and therefore sought
help in her immediate environment.
Every physician she went to visit, sent
her back home despite the abnormal
blood results and the fact that she was
XMRV+.
The lump in her breast was at first sight
perfectly normal and the pain she was
complaining about was 'all in her head',
they reassured her.
When she couldn't eat anymore, she
started losing a lot of weight. And while
she became weaker day by day the
physicians claimed she 'didn't want to'
eat. After all ME/CFS is a psychological
disorder.
*Therapists should help CFS patients
overcoming obstacles to change, such as
maladaptive coping styles en personality
aspects.*
One should definitely not execute more
examinations when these patients
complain, because it would confirm their
sickness-believes.
The fact that XMRV is linked to certain
types of cancer - Ila Singh found it in a
percentage of breast cancers - was
dismissed. They didn't want to go through
the hassle of a breastscan and she was
encouraged to eat a bit more.
Fortunately this patient was determined
to find a physician who would take her
symptoms serious. After the martyrdom of
over nine months, she finally found a
physician who wanted to examine the
increasing lump in her breast.
The diagnosis: Breast Cancer, by now
spread in Lymph glands. The physician she
consulted refused over and over again to
feed her by stomach tube and now the
patient lost so much weight that she is to
weak to start the necessary treatment
right away.
Physicians, you who claim that ME/CFS is
not a serious disease, should be ashamed.
You play with human life. You are not
living up to the oath you once have
taken. This is criminal behavior!"
We hope our friend and fellow ME-sufferer
will overcome this tremendous hurdle you
have put there. She is one hell of lady, an
example for all of us.
If things turn out bad, then we know who
to blame, we know who is responsible.
It's a crime against humanity that
physicians continue to believe that
ME/CFS patients are hypochondriacs.
Besides the fact that this disease is real
and devastating and mortal in some
cases, it is unacceptable that the lack of
examination and treatment by physicians
is 'killing' too.
Thanks to Felixloena for the Dutch
article. In honour of our beloved friend
Niessie.
``
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