diagnosis. CFS is not an accurate diagnosis for ME patients,
thus ME and CFS should NOT be combined via the ICD coding.
ME patients will never get the care or treatment they they need with
a CFS diagnosis. A good deal of research that is published
on CFS has NO bearing on ME, so funding will not even solve it.
ME patients do not have CFS but they may die from it. How many
ME patients have died or worsened significantly, not from ME,
but from the misdiagnosis of CFS and the neglect and harmful
treatment that it has caused.
If we do not stop this proposal to recode CFS to ME, this tragedy
will continue.
Contact: NCHS <nchsicd9CM@cdc.gov>
Donna Pickett <dfp4@cdc.gov> ASAP!!!
ASAP!!! Deadline is Friday, Nov 18.
Sample letter to NCHS:
Dear Sir/Madam,
I am an ME patient and have an ME diagnosis
or - as a patient/family member/stakeholder in this
matter, I strongly object to the combination of ME and
CFS under ICD code G93.3. NCHS has coded ME
and CFS accurately and separately in the original
intent for ICD-10-CM. Please keep the ME and CFS
codes/classification/diagnoses separate.
ME has been coded at G93.3 and should not
be changed or subdivided as in NCHS Option2.
The classification for ME should be and remain as G93.3 under
Diseases of the Nervous System. Based on science and policy,
it is not clinically valid to classify CFS at code G93.3 as the
Coalition 4 ME/CFS proposal has recommended. Such changes
should not be made to ICD-9 or 10CM or to the future ICD-11.
.
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