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>>>>> Help ME Circle <<<<
>>>> 4 August 2011 <<<<
Editorship : j.van.roijen@chello.nl
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The 6th Invest in ME
International ME/CFS Conference 2011
The Way Forward for ME - A Case for Clinical Trials
Conference DVD
To All of Our Friends Who Have Ordered the 2011
Conference DVD (and to those who may do so):
The 6th Invest in ME International ME/CFS Biomedical
Research Conference 2011 DVD has now been completed
and is being readied for distribution.
We apologise for the delay in producing and distributing
the DVD. There are reasons for this which are beyond our
control so we thought it worthwhile just mentioning how
we produce the conference DVDs.
The IiME conferences are documented always on a 4-disc
DVD set that is available in PAL (European/Australian) or
NTSC (North American) formats and which contains all of
the presentations from the conferences and the plenary
sessions.
For 2011 also included in the DVD set is the IiME
pre-conference evening presentation -
`````````````````````````
Science, Politics ... and ME
A Transatlantic View of the Influence and Effects
of Politics on Research, Media and Healthcare
with Dr Ian Gibson and Hillary Johnson
`````````````````````````
The DVD sets are produced by Invest in ME in association
with an excellent professional DVD authoring company
with whom we have worked since the first DVD
production after the 2006 conference. In those early
days IiME did a great deal of the editing, sitting with the
DVD authoring company for some 6 weeks or more,
editing and checking the filming and then spending most
of the evenings, nights and weekends going through
sections of each presentation. Luckily we have
established a good working relationship with the DVD
authoring company and technology has improved so the
editing process nowadays is less labour intensive for us.
After the conference is finished the film is delivered to the
DVD authoring company and it is encoded. We then begin
the work of editing, formatting and designing the DVD.
IiME still control the editing and produce the slides,
decide the format and design of the DVD sets, decide the
position of slides, design and produce the DVD covers,
agree any music and spend a great deal of time going
through the film footage. The DVD authoring company is
now used to the conferences and is knowledgeable about
ME and much of the work is done based on the
experiences from previous conference DVD production.
From 2009 we have used two cameras in the filming of
the conference.
In cooperation with the DVD authoring company we try to
remove as many of the unnecessary noises and sounds
as possible, such as coughing or occasional sounds from
the audience. We have to increase the sound volume of
some speakers, remove unnecessary sounds and film
blockages (such as people moving around) and generally
try to provide the best possible effect from which people
can be educated regarding the biomedical research being
presented.
Most of this will be transparent when the finished product
is viewed - but we thought we would provide an idea as
to why the DVD production takes a while before
distribution begins.
Another important factor is, of course, that IiME subsidise
the cost of the DVD production in order to make it
accessible to as many people as possible. The Trustees
cover the shortfall in costs that we do not get back
through sales. To minimise the cost we work around the
DVD company's other projects - which can mean waiting
until there are free moments in the company's schedule.
In this way we hope to reduce costs - but it can mean a
delay.
This year as well we have the new research from the
Haukeland University Hospital, Norway. Before the
conference the Norwegian presenters, Professor Olav
Mella and Dr qystein Fluge, discussed with us the amount
of data that they could present regarding their exciting
new research. They wished to present as much as
possible but did not wish to compromise the publication
of their imminent paper. IiME promised that we would not
distribute the DVD (including their presentation) until the
Norwegian researchers gave the go-ahead due to the
magnitude and implications of their research. In return
Professor Mella and Dr Fluge were very open in their
presentation and gave as much information as they
could.
We do not wish to jeopardise their research publication so
we are now awaiting news of their imminent publication
before beginning the distribution of the DVD.
Their paper is now completing the peer review process
and we would rather wait a little longer before
distribution begins in order that we can include this
presentation on the DVD as well.
This has forced a delay but we hope everyone will
understand the reason for this. The research by
Professor Mella and Dr Fluge, experts in their own
(non-ME) field, could be ground-breaking.
The end product of the work in producing the conference
DVD set is a professionally produced educational DVD set
which can not only educate a range of people from
healthcare professionals to patient groups and the media
- but can also serve as a historical document.
The conference DVDs have also been used by healthcare
professionals to claim professional training points -
another important aspect for busy GPs who were not able
to attend the conference in person.
This year Invest in ME has also included the
pre-conference presentations from Dr Ian Gibson and
Hillary Johnson - Science, Politics and ME - an
appropriate and topical title when one considers the
current orchestrated and negative media campaign being
waged by a section of the media to denigrate ME
patients and any serious attempts to perform biomedical
research.
In order to progress research and awareness into this
disease Invest in ME made the theme for our
CPD-accredited 2011 conference - A Case for Clinical
Trials. The DVD set is an essential aid for healthcare
professionals, doctors, nurses, paediatricians,
occupational therapists, researchers, ME support groups,
people with ME and those working in social services,
educational support and the media.
More details and an order form may be found at this link:
Invest in ME
UK Registered Charity Nr. 1114035
PO BOX 561, Eastleigh SO50 0GQ
Support ME Awareness - Invest in ME
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